Dear Readers,
I am sadden to inform you all that yesterday morning, the two and a half-year old toddler who was fighting for her life against stage 4 high risk neuroblastoma, lost her life early yesterday morning. As you all know, I wrote a beautiful blog regarding the beautiful toddler, named Layla Grace, a few weeks ago and asked all my readers to please help with their prayers or any kind of donation, if possible. Layla Grace’s parents have documented the young one’s battle with the disease and yesterday through their Twitter they announced her passing. This is a tough time for the family as it is not easy for any parent to lose a child. I ask, I implore you all to please continue praying for this family in this very hard time for them all. May Layla Grace rest in peace! I hope that she is in heaven dancing with angels and watching over her family.
If you would like to know more about Layla Grace please visit their twitter page @LaylaGrace or the family’s diary of their struggle, http://laylagrace.org/. Thank you for listening and for caring about this young child, whose life was cut short by this terrible disease .
With all my love,
Francis Rodriguez
Neuroblastoma is a malignant (cancerous) tumor that develops from nerve tissue. It occurs in infants and children. The first symptoms are usually fever, a general sick feeling (malaise), and pain. There may also be loss of appetite, weight loss, and diarrhea.
Other symptoms depend on the site of the tumor, and may include:
- Bone pain or tenderness (if the cancer spreads to the bones)
- Difficulty breathing or a chronic cough (if the cancer spreads to the chest)
- Enlarged abdomen (from a large tumor or excess fluid)
- Flushed, red skin
- Pale skin and bluish color around the eyes
- Profuse sweating
- Rapid pulse (tachycardia)
Brain and nervous system problems may include:
- Inability to empty the bladder
- Loss of movement (paralysis) of the hips, legs, or feet (lower extremities)
- Problems with balance
- Uncontrolled eye movements or leg and feet movements (called opsoclonus-myoconus syndrome, or “dancing eyes and dancing feet”)
Neuroblastoma can occur in many areas of the body. It develops from the tissues that form the sympathetic nervous system (the part of the nervous system that controls body functions, such as heart rate and blood pressure, digestion, and levels of certain hormones).
Most neuroblastomas begin in the abdomen in the adrenal gland or next to the spinal cord, or in the chest. They may also start in other areas. Neuroblastomas can spread to the bones (face, skull, pelvis, shoulders, arms, and legs), bone marrow, liver, lymph nodes, skin, and around the eyes (orbits).
The cause of the tumor is unknown. Neuroblastoma is most commonly diagnosed in children before age 5. The disorder occurs in approximately 1 out of 100,000 children and is slightly more common in boys.
In most patients, the neuroblastoma has already spread when it is first diagnosed.
The expected outcome varies. In very young children with neuroblastoma, the tumor may go away on its own, without any treatment, or the tissues of the tumor may mature and develop into a benign (non-cancerous) tumor called a ganglioneuroma, which can be surgically removed. In other cases, the tumor spreads rapidly.
Response to treatment also varies. Treatment is often successful if the cancer has not spread, but if it has been spread, neuroblastoma is much harder to cure. Younger children often do better than older children.
Tumors with certain genetic characteristics may be harder to cure.
Children treated for neuroblastoma may be at risk for getting a second, different cancer in the future. (Google Health Click here to learn more)
SOURCE: I have taken the picture of Layla Grace from LaylaGrace.org, I hope that the Graces forgive me for taking the pictures from their blog prior to asking permission.
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